BE HAPPY IN YOURSELF

Be happy in yourself and do not blame others because life is not only about you exclusively to demand always a 24hour self-centred attention from others who love you. A trend of right to entitlement to be happy at expense of others causes problems in families, society of online. The happiness demanding attention is ruining relationships. Some demand a nonstop unrealistic pressure from loved ones all moments be spent only with them day or night. So time taken to do things or working to provide for them is considered ‘dehumanizing neglect’ for not catering always for them only. Onus of their life is always shifted to others to become totally responsible for them. So like emotional babies, do not realise that growing up means taking a full responsibility for actions. Therefore permanently blame others for problems of their lives or for being born in wrong the environment to undesired parents whose fault made them as they are. Do not put all the anger, and bitterness on those who care about you most. As long as they receive help from everyone at all times without need to help others they feel fine.58216d1a9df4cedf435f5d8a037d7cc4 Dare others ask them to be patient or to wait for their turn often become angry or agitated throwing things at people or breaking things to hurt owners. These behaviour often starts from tantrums of terrible twos not corrected by their innocence not to offend them. Some sulk and cry for hours on end or, develop headaches from crying so cycle is repeated over and over again. A bad upbringing ranges from the spectrum of lack of discipline, correction, ADHD or autism not diagnosed early taking its toll into adulthood. Pride, ego, defiance, anti establishment becomes the norm so used to getting own ways for too long. A genuine effort to support and help them seen as intrusion although often naive of the outcome of their actions. Most of the time the very family considered not good enough for them end up picking up the pieces of their trail of damage to others. Always in denial of reality never aware of effects of their behaviour on a family, relatives, friends or children. In extreme cases traumatize or hurt others incapable of understanding risks or the consequences of an action in advance before it happens. Constantly operate in high-strung emotion demand that those around them always walk on egg shells. Unaware792e6019ecd1c629c0ad3c773ee524ca of social rules etiquette unable to tolerate if attention or a conversation is not only about them. So emotionally draining others yet complaining about lack of attention from those doing their best to live with them. Underlying this state of mind is influence of the liberal views of deception that they are their own self-made people unaccountable to nobody so must depend exclusively only on their own ideas, feelings choices egos without recognising impact effect of damage in hurting others. If not dealt with grow into megalomania, tyrants in extreme cases never content with their lot in life. Always want more and more beyond realistic expectations or available resources in life. Suck others dry but still moan about not being given enough attention. Emotionally draining accurately described ‘manic behaviour of such a person does not understand brain function process of information or instructions properly in the interest of the good of all others. be-happyUnhappiness causes bile toxic chemicals to affect mood swing, sugar withdrawal symptoms, substance abuses affecting genetics of children from some parents, alcohol, poor communication skills, lack of maturity, background experience that intrude into adult years if unchecked. Other times consequence of their sheer pathological wickedness stems from the habitual actions since childhood. Sadly, in schools, emphasis is more on a head knowledge more than personal growth development and emotional maturity required for a longterm living. Another factor is the attitude of certain men seen as powerful if they are rebellious to authority. Some ‘success’ sometimes equated to a bully who tramples over all others bulldozed their way to achieve their goal, be it on corporate ladder, or in family, church, abusers manipulate or attack those who stand up to them. 57c69b8d9a2cff284ba95ed892061acaIt is predicted in Bible by Jesus during the end time lawlessness will abound as such people become more haughty, and disobedient to authority hate discipline, lovers of self more than Lovers of God, high minded ever learning but unable to grasp truth. So cannot understand basic rules, respect, consideration for others. Always insists on their way or no way, self-destruct snapping because they refuse to help or correction to save them from themselves. Truth hurts but God says His people are destroyed for lack of proper Godly knowledge and proper understanding of daily roles in relation to others on Earth. Confusion today in society and wars come from inability to compromise or to put others first. Some insist their way is only way manipulate or force others put under pressure but indulge without listening or valuing others due to greed, love of money, fear. Worse of all undergirding greed motives spur them on to destroy others for their selfish gains. It is well-known in  living history many lives destroyer by not living and let live lifestyle agreement to agree to disagree to live in peace chucked out of window.

HOW TO EAT BETTER

 james wong

This interesting and educational book by James Wong reveals the facts behind the nutrition hiding within our garden produce, with facts backed by science rather than fiction. In it, James Wong reveals not only the best produce to eat to obtain certain vitamins but also the best way in which to eat them, from lightly cooked plum tomatoes with a drizzle of olive oil to how to prepare a chilli. James Wong tells us a bit about his past and to find out more about what How To Eat Better is all about.c447140e6c24fc011bf5faa2e07464f7

James Wong is often asked what first made him interested in plants. In fact he gets asked this question so often by taxi drivers, journalists and mates down the pub so comes to expect it as a given. Funnily enough, this kind of question is one my football-mad brother has never, ever been asked about his passion. So it seems almost as if dedicating your life to studying what many non-geeks see as just a leafy, green backdrop to everyday life is considered surprising. Yet to him is a lifelong plant obsessive, what I find surprising is quite the opposite. I just can’t understand why everyone isn’t as fascinated by plants as him. Whether we are aware of it or not, plants still underpin the food we eat, medicines we take, the air we breathe. Everything from our basic anatomy, to our most deeply hard-wired instincts are direct result of collaboration with the plants. Therefore understanding plants is key to understanding who we are. james wong

James Wong How To Eat Better – published by Mitchell Beazley, £20 http://www.octopusbooks.co.uk

How does Wong gather research for your books to ensure reliable facts?
Well, starts by trawling through peer-reviewed studies in scientific journals to find promising leads. Of course, sound science is all about reproducibility, this does require quite an exhaustive search and some pretty late nights! So findings from one study needs to be reflected by a good number of other papers before it can be deemed reliable. Scientists look at a body of research as a whole when drawing conclusions not just individual papers. For last two books the number of papers read is well into thousands, which is why it takes so long to research and write each new book. Always works with other experts to peer review all the findings and give much-needed second or third pair of eyes to query and fact check. For example, previously worked with the RHS heads of horticulture and science to review the entire text of his gardening books. For book worked with a brilliant doctor in nutritional science.James Wong

The most surprising interesting thing learnt writing How To Eat Better?
Perhaps the most surprising discover was something quite counterintuitive and it was about coffee. As a scientist used to often hearing claims coffee is disastrous for your mood, heart and maybe a risk factor for cancer assumed they must be true. However when you actually look at the objective, scientific evidence, not only are the claims poorly supported, but in fact quite the opposite may be true. In fact coffee is one of the richest dietary sources of a group of naturally-occurring compounds called polyphenols believed to prevent a wide range of so many degenerative diseases, contributing up to 50% of  antioxidants in the famously healthy Mediterranean diet. Thank you science.james wong

Do you always employ own tips and tricks in kitchen as a chef?
A lifelong obsession with food and come from a family of people who worked in restaurants, so absolutely! Inherently quite lazy though, so included tips from the research thought were genuinely practical and accessible for real people. For example, storing tomatoes on the counter is just as easy as popping them in the fridge but gives you measurably more flavour, phytonutrients. Serving them with avocados can improve the absorbability of antioxidant lycopene (believed to have cardio protective effects) by 400% too. Really needs very little excuse to eat more avocados! This book is not about obscure ingredients or restrictive diets. It’s just about taking the food you already love and making it even better. Personally tested all recipes in the book three times, which explains why many are based around shortcuts and cheats! Love of good food is from his Love of eating! Guesses when you are fascinated by plants this conspires to make you obsessive about food. On a recent filming trip in Japan spent long using the translate app on phone to find dishes that featured weird veg on every menu (hostas, bracken, ferns, cherry and oak leaves are the common foods there) colleagues ended up ordering without him every time.Screen-Shot-2017-04-12-at-11.45.11.png

Most important message to take from How To Eat Better?
Eating healthily in our society is often wrapped up in the notions of expense. Somehow food that costs more, sounds more exclusive or is tracked down from some far flung place is often thought to be instantly better for us. The research tells quite another story. In fact very often the cheapest, most accessible option can be better for you. Tinned tomatoes have twice the phytonutrient lycopene of fresh tomatoes. Frozen blueberries, despite being half the price, have the same level of antioxidants as fresh. Instant coffee also has twice the potentially heart-healthy polyphenols of ‘artisan brewed’ coffee. So empowering, especially at a time when many can simply not afford to fill their trolley with the latest ‘superfood’. The single best thing you can do to improve your diet is simply to eat more fruit and veg. Full stop. The tips and tricks researched might make the fruit and veg you love even better for you. You can purchase your copy of How To Eat Better by James Wong here.

Want to find out how to grow some of your own super-veg? Click here.

To see more great garden books, click here.

RUNNING AN EXTRA MILE

Katie Cooke, Dr Colin DohertyAmong runners one moment a woman, collapsed on the ground and frothing at the mouth the next. For a short time she is lost to the convulsion and then she scrambles to her feet and sprints away. Katie Cooke will not let epilepsy get in the way of a race. The 19 year old student from Cherrywood South Dublin has what her specialist doctor calls “an arsenal of epilepsy, contends with 15 convulsions daily that makes her unconscious. Katie said, “her whole body shakes feeling her muscles jump, like everything has been sucked out of her so cannot breathe. So every single day she often loses control.  Despite having to cope with multiple seizures, Cooke won prestigious events including her age group in the Dublin City Marathon and she runs 5km in under 17 minutes. She is often seen pounding the streets with her running partner, Dr Colin Doherty, who is her consultant neurologist. But she was not always so athletic.Katie Cooke with a running trophy

Image copyrightKATIE COOKE

Diagnosed at the age of nine with frontal lobe epilepsy, she managed condition with medication until it deteriorated when puberty hit and her hormones started “kicking up.”She was not able to get out of bed, unable to do anything for herself and could not really speak. My Mum was dressing and showering me,” she says. Cooke was admitted to Our Lady’s Children’s Hospital in Crumlin where she remained for 10 months. Despite being involved in numerous medical trials she regressed, lost control of her back and hips, and by the time she was discharged she wasn’t able to walk. And she could not hold herself up in a wheelchair for about seven months but being stubborn person wanted to prove to people what she could do. After a lot of physio started jogging every day and started to absolutely love the freedom.

Katie Cooke in a wheelchair

Image copyrightKATIE COOKE

Cooke now runs every day and says a missed session sees the tiredness and dizziness of her earlier condition return.  Running only alleviates her symptoms, it has not been a cure. The raised heart rate brought on by running triggers more seizures than if she did not run, but Cooke says it improves her general well-being which is a negative worth accepting. Her neurologist, Dr Doherty, has weighed up the pros and cons from a medical perspective. “The particular challenges of having epilepsy and long-distance running are similar to walking challenges too and I think the general benefits outweigh these risks,” he says. “If you took the average long-distance runner and measured all their health parameters against someond who does not run you would find, no matter what disease or disorder they carry with them, they are better off.” So health conditions affected by starting exercise, it is always important to consult your doctor first.


Dr Colin Doherty explains epilepsy

Various scientific images of brains

Image copyrightSPL

The brain consists of about three billion cells and all of these cells are active, but they do not fire together, the brain is a de-synchronised machine. A signature of epilepsy is the cells fire together in a synchronised way. If a million cells fire together it causes a change in behaviour, when all three billion cells fire together that causes convulsion or a fit. There are about 40 distinct types of epilepsy. In some cases people will just stare blankly, others will wander around in a confused state and there are those who fall to the ground with convulsions. Competitive running was initially a non-starter for Cooke. As soon as she had a convulsion during a race paramedics withdraw her from the event, but a chance comment at one of her consultations led Doherty to offer himself as her running partner and he has kept her on track ever since.  He says: “I’m a specialist in epilepsy but my sole role when running with Katie is to stop people from taking her off in an ambulance. I just stand there and say ‘Katie’s fine, I’m her doctor, she’s going to recover.” Despite Cooke’s seizures, the nature of her epilepsy means her body does not require lengthy recovery time, she is able to immediately get up and run again. Doherty believes it is her fitness levels which help with recovery._93538541_mediaitem93538539.jpg


Hear more from Katie and Colin

Listen to the BBC Ouch talk-show to find out more about Katie Cooke, Dr Colin Doherty and their running partnership. “Katie is a very serious runner, and she trains properly. I’m very confident that this is a really positive experience for her,” he says. As well as sport, college, Cooke also has to navigate a social life and relationship with partner Jack, a role most daunting at night when Cooke’s seizure’s make her scream, thrash around and cause the bed to shake and shudder. Cooke says: “He’s one of the most chilled people I know and he sleeps through my seizures which is a bit weird. He wakes up for the odd one because some are quite violent and was slapped in the face before, but he just falls asleep again.” In terms of intimacy Cooke says sex does not trigger seizures, although a fit can occur at such times, and women report an increase in convulsions around the time of ovulation and their period.Jack and Katie Cooke

Image copyrightKATIE COOKE

Her nightime seizures are accompanied by hallucinations of a shadowy man who she says “comes for her” and it is these which leave her most exhausted. She does not sleep well at all,” she says. Her education suffered and she missed the majority of secondary school. Despite that, she managed to cram three years worth of curriculum for the Irish Leaving Certificate into one year, secured a place at college to study sports management. Doherty calls her a “remarkable young woman” for all she has achieved while handling so many severe convulsions on a daily basis. When people watch Katie drop to the floor mid-run it is alarming but Doherty believes being public about it will help others with the condition. So there is need to facilitate people to live a normal life as possible and they need to be encouraged to do everything, he says. The biggest barrier is not the safety issue but the perceptions of other people.”

For more Disability News, follow BBC Ouch onTwitter and Facebook, and subscribe to theweekly podcast.

Related Topics

HOPE RESTORED IN GOD

anja-loven-nigeria-boy-composite.jpg

Hope is restored in humanity through the miracle life of Hope who survived the streets.  It is exactly one year ago the world came to know a young little boy called Hope. This week Hope will start school. Hope now lives with care worker Anja Ringgren Lovén, on 30 January 2016 and one year later on his first day of school. Anja Ringgren Lovén Facebook  page gives more details by the Danish aid worker who rescued the young boy who ostracised by his community in Nigeria says now he has completed his first week at school. Anja Ringgren Loven marked the landmark in 3 year old Hope’s life by recreating similar image of her encouraging him to drink from a bottle of water as shared around the world one year ago. Ms Loven and her husband, David Emmanuel Umem, run an orphanage in south-east Nigeria for children who have been abandoned by their families as a result of superstitious beliefs, called the African Children’s Aid Education and Development Foundation (ACAEDF).

They took on and named then two year old Hope on 30 January 2016, after he was accused of being a witch. Hope was emaciated, riddled with worms suffering hypospadias, inborn condition where one has incomplete developed urethra. Writing on Facebook at the start of this week, Ms Loven said: On the 30 January 2016, I went on a rescue mission with David Emmanuel Umem, Nsidibe Orok and our Nigerian team. A rescue mission that went viral, and today it’s exactly 1 year ago the world came to know a young little boy called Hope. This week Hope will start school. Thank God for Divine intervention on behalf of Hope and God help billions of children needing urgent support in the world in Jesus Name. As  400,000 children at risk from Nigeria famine. The post, contrasting the old and new images, has been shared more than 27,000 times. Ms Loven was named “the most inspiring person of the year 2016” by Germany’s Ooom Magazine at the end of last year, beating the likes of Pope Francis and Barack Obama to the title. George Kindel, OOOM’s editor in chief, who led the jury that chose the list, said: “When she saw the starving child, she acted like a human being and became an inspiration for millions. Her sustained efforts to help the abandoned children of Nigeria gives us hope and encourages us to follow suit.”  1 John 4:4 says in the Bible, little children, you are from God and have overcome them, for HE who is in you is greater than he who is in the world. Thanks be to God for all the compassionate kind-hearted people who help give hope to Hope and others.
Original Article by Independent Writer AdamWinthnall@adamwithnall 
Reblogged and retitled by Godshotspot

END OF THE CIGARETTE

The cost of a packet of cigarettes in Australia will reach AUD$40 (£24) by 2020

Image copyright Getty Images 

Australia was the first country in the world to introduce mandatory plain packaging for tobacco products and UK will have followed suit by May this year. But will any country copy Australia’s plan to keep increasing taxes until a packet of cigarettes costs AUD$40 (£24)?

It’s not easy being a smoker in Australia.

The smoking bans started inside – in workplaces, bars and restaurants – and moved out. “Smokers would congregate on footpaths and near public transport creating clouds of smoke – what we call ‘smoking hotspots’,” says Mark Driver, Sydney’s Park and Recreation Planner.

“Now, smoking is prohibited within 10m (33ft) of a playground, within 4m (13ft) of the entrance to a public building, at rail platforms, taxi ranks and bus stops.”

Those are the rules in New South Wales, but they are mirrored in many other states. Smoking is banned on many beaches, and most Australian states have now banned cigarettes in jail. All states ban smoking in vehicles if children are present. Fines vary, but in some places you may be fined AUD$2,000 (£1,210) if you smoke in the wrong place. And even if you don’t, you’ll be paying more than that each year by 2020, if you smoke just one AUD$40 pack a week.

No smoking sign, Edinburgh Gardens, North Fitzroy, Melbourne

Image copyrightGetty Images

It’s already five years since Australia became the first place in the world to make plain cigarette packaging compulsory. Tobacco-advertising has long been banned, and now branding has too. The boxes are a drab, dark brown colour (deemed the ugliest in the world by a team of Australian researchers), they carry no logos, and graphic health warnings cover most of the front of the box. You see this gigantic, see-and-never-forget kind of image of throat cancer – a hole in the neck, or what a stroke looks like with a brain sliced open,” Chapman explains. Some smokers say they don’t even look at it, but there has been research which shows that with the people who engage in those avoidance strategies, it’s actually a predictor of them quitting later on.”Cigarettes on a shop shelf in Sydney, New South Wales, May 2016

Image copyright Getty Images 

All this came on top of anti-smoking campaigns that have been driving down smoking rates in Australia since the 1970s. “It’s a toxic, poisonous mix of substances, including ammonia, the bleach in toilet cleaner; acetone, the chemical in nail polish remover; benzene, found in paint stripper; and hydrogen cyanide, used in rat poison,” went one advertisement. “And smoking delivers it straight to your body.” The evidence shows that these hard-hitting, graphic ads that really show the harms of smoking are the most effective says Scott Walsberger, head of tobacco control at Cancer Council NSW. But other campaigns have also tried a gentler approach, emphasising how quickly a smoker’s health starts to improve once he or she has quit.

Australian Quitline smoking advertisement

It was this approach taken by creators of an interactive, behavioural change app called My Quit Buddy, launched in 2012.

Offering tips for giving up with the daily motivational messages, distractions to overcome cravings, and a place to share success stories and celebrate milestones, it has now been downloaded more than 400,000 times in Australia alone.


My Perfect Country

In a world where a lot is going wrong, there is also a lot going right. So, what if you could build a country with policies that actually worked, by homing in on ideas from around the world that have been truly successful?


“It shows people that just by even quitting for five days, you can start to see changes – you’ll have more money in your wallet, your skin becomes clearer,” says Paul Den, one of My Quit Buddy’s creators.

“And the community forum shows people that they’re not alone – people generally trust other people more than they trust the government.”

The cumulative effect of these policies is that smoking rates for adults have almost halved since 1980, says Henrietta Moore, of the Institute for Global Prosperity at University College, London, and are now at about 13%, compared to a global average of about 20%. There has also been a decrease of almost 23% in the rate of hospital admissions caused by smoking. Simone Dennis, an associate professor at Australian National University, says a culture of shame surrounding smoking has begun to emerge, and that itself has become a smoking deterrent. Take, for example, the policy of confining smokers to areas where they will not create a public nuisance. If you think about smoking in public, those tend to be spaces that no-one wants to hang out in anyway,” she says. So smokers feel marginalised because they can’t be citizens in public spaces any more, because they’re restricted to these kind of ‘dirty spaces.'”


Tobacco in Australia

  • The government has committed to reduce the number of adults smoking on a daily basis to 10% by 2018
  • Plain-packaging rules insist that 75% of the front of a cigarette pack is covered by a health warning, and 90% of the back
  • Tobacco taxes rose 25% in 2010, and are now rising 12.5% every year
  • The Tasmanian parliament has discussed a bill that would ban smoking for those born after 2000
  • Australia has not gone as far as Bhutan and Turkmenistan which banned the sale of tobacco products

Read: The battle for control of the cigarette packet


These days, smoking is often taken up by people who are on lowest rungs of the socio-economic ladder, she points out, and adds a burden of shame to people who might already be marginalised.” If it’s the poor who are now the most likely to smoke, it’s hard to see how they will afford the AUD$40 pack of cigarettes.

Credit: Original article title Australia Stubbing Smoking By30 January 201

Header by God’sHotSpot reblogged

Listen to My Perfect Country on the BBC World Service

Join the conversation – find the BBC World Service on Facebook and Twitter.

ACUTE SYNDROME

Road to Recovery Sign
Post-acute-withdrawal syndrome (PAWS), post-withdrawal syndrome, protracted withdrawal syndrome or prolonged withdrawal syndromes describe a set of persistent impairment occur after withdrawal from alcohol, and often these opiates benzodiazepines, or antidepressants, other substances. The infants born to mothers using substance of dependence during pregnancy may also experience a post-acute withdrawal syndrome. While post-acute withdrawal syndrome has reported by those in the recovery community, that there have been few scientific studies to support existence.  Because of this disorder not recognized by Diagnostic and Statistical Manual of Mental Disorders or major medical associations. So be realistic to stop burying your head in the sand to make tough decisions for the changes however hopeless life seems to you.shutterstock_102143875-e1442238812300
Drug abuse, including effects of alcohol prescription drugs, can induce all these symptomatology which can resemble mental illness. Can occur in  intoxicated state and during withdrawal state. In some cases these substance-induced psychiatric disorders can persist long after detoxification, such as prolonged psychosis or after the depression after taking amphetamine or cocaine abuse. A protracted withdrawal syndrome can also occur with symptoms persisting for months after the cessation of their use. Benzodiazepines are the most notable drug for inducing prolonged withdrawal effects with symptoms persisting for years after cessation of use. Severe anxiety and depression are commonly induced by sustained alcohol abuse which in most cases abates with the prolonged abstinence. Even moderate alcohol sustained use may increase anxiety and depression levels in some individuals. In most cases drug-induced psychiatric disorders fade away with prolonged abstinence.relapse-factors
Symptoms can affect recovery process and restoration of life. Symptom can sometimes come and go with wave-like reoccurrences or fluctuations in severity of symptoms. Common symptoms are impaired cognition, irritability, mood swings, depressed mood, anxiety; all of which may reach severe levels which can lead to relapse. Protracted withdrawal syndrome from benzodiazepines can produce symptoms identical to these generalized anxiety disorder as well as panic disorder. Sometimes prolonged nature and severity of benzodiazepine withdrawal symptoms means an abrupt withdrawal not advised. Instead tapering by reducing in slower stages because of the common symptoms of post-acute withdrawal syndrome predicaments are frustrating fluctuating emotions:mesa-drug-rehab-for-relapse-prevention-e1447182081627

  •  Psychosocial dysfunction
  • Anhedonia
  • Depression
  • Impaired Interpersonal skills
  • Obsessive-compulsive behaviour
  • Feelings of guilt
  • Autonomic disturbances
  • Pessimistic thoughts
  • Impaired concentration
  • Lack of initiative
  • Craving
  • Inability to think clearly
  • Memory problems
  • Emotional overreactions or numbness
  • Sleep disturbances
  • Physical coordination problems
  • Stress sensitivity
  • Increased sensitivity to pain
  • Panic disorder
  • Generalized anxiety disorder
  • Sleep disturbance (dreams of using, behaviors associated with life style.

20140711-213822-77902045
Symptoms occur intermittently, but are not always present. They are made worse by stress or other triggers and may arise at unexpected times and for no apparent reason. They may last for a short while or longer. Any of the following may trigger a temporary return or worsening of symptoms of post-acute withdrawal syndrome:

  • Stressful and/or frustrating situations
  • Multitasking
  • Feelings of anxiety fearfulness, or anger. Claustophobic
  • Social conflicts
  • Unrealistic expectations of oneself

The unpredictable nature of symptoms makes progress complex. Abstinence is the best option regardless of excruciating debilitating mental and physical state, if detoxing rest assured it will pass.f366767263bd8febce7da7ed76b8ce35
Overwhelming symptoms often need a Cognitive Behaviour Therapy and plus a good pain management team to support and help you. Do not suffer in silence get physical massage to help enhance your blood circulation. Take multi – vitamins food supplements to ensure vitamins A, B, C,D, E and drink water to help detox. These interventions can help plus eat healthy, sleep well and find stimulating hobbies to help boost seratonin. Ensure Physical activities and physical Exercise can help distract the mind but do not overdo it pushing yourself beyond your limit. Do not feel guilty or sad for the past missing out numbed by medication so may be seen as insensitive or lazy. Apologise if you have to, move on to rebuild your life, encourage and reward yourself for your success of self control discipline that helps you to continue to heal. Pray to God, believe Christ and seek empathic confidential support for your wellbeing. No matter how stressful and painful it feels during recovery there is light at the end of the tunnel and you will smell flowers again.84197be22820dadf7a9338cbb6eab423
Ultimately endure to the end to emerge at other side turns your success to help others. The water you crossed on the river yesterday is not the same water on river you cross today. It means you a learning emotional being you change day by day. Do not have a perceived fixed expectation to beat yourself up for not meeting standards. Life is dynamic so be grateful so thankful for each day alive try to cope as much as you can see cup half – full. Therefore do not be disheartened if your own rate of recovery seems slower than the other people you interact with on the social media forums. Do not ever give up on yourself or give in to quit there is hope for your future in Christ in God because Jesus Lives you can face tomorrow to the Glory of God in Jesus Name. Do not toxic anger or bitterness rob you of JOY of Lord. Overwhelming distress caused by these unpredictable emotions can drive you to abandon treatment. It may seem easier to keep on numbing pain by just more pill popping yet long – term damage to body takes its toll eventually. And can poison your blood circulation so affect your immune system repeating cycle of dependency on medication and the side-effects. Herbal treatments are available so not do force changes by date setting to get better. Process sometimes daunting so do not try to calibrate your success rate by comparing it to others in treatment.

IS SICKLECELL CURED?

14420_Image -Professional group

Sickle cell can be cured in some cases if a right match blood donor is found using the cord blood saved after birth of a new baby from the donor. So it is important to bring awareness to suitable potential mothers to donate their cord blood cells or placenta to use in helping improve the health and lives of many suffering with pain. In addition, blood donors can help with bone marrow harvested from bone. This intervention is used for Sickle cell treatment currently explored as the new approach used in some countries with an available right medical care or resources. Treatment is labour of love by people willing to help relieve agonising pain. Intervention leads to cure as true story of Carol shared in her own words:Picture-1
My name is Mirriam Carol Mulumba, but my friends call me Carol. I am the first born child to my parents Abudullah and Lucky, followed by my younger brother Mark and little sister Aliah. When I was just three weeks old, my parents were told that I had sickle cell disease. My mommy and dad cried because at one time in the past children with the disease rarely lived past their teens. I was very sick whenever I got ill I had to stay in hospital for weeks constantly had horrible pain. My head felt like someone kicked it, and my stomach felt like someone punched it, my foot felt like it was stuck under a rock and my heart felt like it was being squeezed. I spen, time in hospital on morphine drip, oxygen, folic acid, penicillin v, voltarol, blood transfusions, antibiotics. When I was 6, it got so bad the doctors said my only hope would be cord cell transplant. My parents decided to save my younger brother Mark’s cord cell blood and he happened to be a perfect match for me! I had to go through chemotherapy before receiving my brother’s bone marrow and the cord blood cord cells at Methodist Children’s Hospital for 21 days. The effects of chemotherapy were rough for me. I lost all of my hair, my face was swollen, had stomach problems bad mood swings caused by the side effects of medications. A month after transplant, test showed cured of sickle cell.
hqdefault (1)
This type of intervention is first of all for chronic pain type of sickle cell and also requires finding the right blood donor matching the blood type of the person needing the transfusion. The donor blood is stored in freezer and saved for use at a later date. Sickle cell patient undergoes many days of chemotherapy reprogramming blood cells ready to receive donor blood stored earlier. In addition blood marrow is harvested from donor/s by extracting the bone marrow stored with cord blood for new procedure to exchange donor blood. Reason for this method of intervention is blood tissues break down from sickle cells build block veins in blood stream coagulate prevent blood flow circulation. Thickened blood gel unable to flow through body entirely drained for fresh blood. Untreated blood oxygen is limited cause stroke, saturated liver does not function properly.CZu3QuIWEAAsWDT

So require Detoxifying coagulated blood from body as a result of the broken down blood cell accumulation blocking veins to cause intense joint pain. The patient’s blood flow become restricted so limited and given blood transfusions. Their eyes become yellow from jaundice due to the liver’s inability to function efficiently. A constant journey to hospital sometimes siblings in various wards simultaneously while trying to work and run the family. The stress and pressure are beyond any words of verbal expression to adequately describe these experiences. A family has to be strong for the sake of the children not to speak negatively around them to put fearbin them. One has to be strong and pray for the help of God if believer to endure and ensure well being and health of the primary carer. In addition, as the children with sickle grow they are always severely affected by school attendance or school work. My first awareness of sickle cell was so profound when my classmate did not turn up on the Monday morning in primary school. We asked our teacher about her absence and was told she died.stream_img

She was so healthy looking from from the outside and it was a shock she died at about 10 years old. Grace also had a twin brother in the same class with us who continued his education and is renowned global artist today. So his beautiful sister died early mostly due to a lack of proper understanding for treatment in the early years. Then another girl died next called Miriam in first year 7 Secondary School. This triggered the word “sickler” again in my mind as the memorial was held in the school. A few years later relived loss of my friends again when it seemed that sickle cell had unstoppable vengeance on mostly my friends and class mates. It was during A levels when my brother who lost his best friend in sixth form called Anson. The traumatic pain of loss on family and on my brother unbearable.X2604-S-24

Each potential partner is a carrier of the gene so the children inherit the illness from birth. Some people do not realise   how traumatic it is for the whole family to deal with Sickle cell. Usually there are no external features, body turning blue, blushing or the usual means used for an assessment of a patient. Meanwhile the chronic intense pain going through has effect on the patient perceived as not happy and bubbly. Constant daily pain management means they can be seen as moody. Furthermore they do not feel like talking about Sickle Cell pain all the time so may not share with everyone their health condition. As a result others may be even told but think they present  to be unwell. Seeing them look healthy to people means they are not taken as seriously as other visual critical illnesses are treated. Therefore very frustrating in pain and misunderstood by some people. The family often has more than one who is unwell so multitasking to cope and as the chart shows have to live with these uncertainties for life. Loss of my friends stayed with me for so long yet sickle cell issues surfaced again as patients in day wards are being sent back to emergency wards with drips attached. I wondered why most hospitals seem helpless to save all these precious lives. Blood transfusion is urgent like a heart attack TIME IS OF THE ESSENCE EVERY SECOND COUNTS literary with Sickle Cell treatment. This because blood flow is blocked by Sickle cell moonlike shape reduces blood circulation oxygen flow cause breathing problems oxygen given immediately to Sickle cell patient.sickle-cell1-300x195

genmod11.jpgThen again in First year university another beautiful girl called Peace was lost this time the daughter a pastor. It totally baffled me why God HIMSELF it seemed to me did not save her life. Final year again another girl Sophia died at the same university and we had to watch her boyfriend deal with loss at such a young age. Parents are hardworking and successful and could afford any medical care required at the university hospital yet she died too. A close relative Divina died too so this experience helped me become a friend to her best friend living next door to help support her with the bereavement while writing final exams. Somehow we sailed through thinking that sickle cell life practical experiences left behind for good forever. 3 years later met and married a wonderful spouse and started raising a family. Often romantic love and dating does not consider these genetic matters in those days. Too much in love to think of living without spouse focuses on wedding plans. It was during routine pregnancy checks for expectant women these sickle cell matters came up again. Choice is given for amniocentesis with the risk of loss due to a miscarriage or termination if preferred. Throughout pregnancy our whole world suddenly tumbling down by sickle cell test option. Seek counselling support and mentoring to help deal with these issues. The Sickle Cell illness can pull family together to become stronger to face the challenges. What did not kill you makes you stronger but some families so devastated by news blame each other and even divorce. At times mothers become the sole carer of the children abandoned by spouse who leaves because cannot handle pressure. It is necessary to seek help not to break down but be able to support the children as gifts from God to you. Everyday they are alive is another medical miracle you must be grateful and thankful for child.

baby1
Result showed full sickle cell but decided not to terminate because it did not make sense to prevent life before living. This is the personal challenge that brought us to learn more about sickle cell and how to better manage this illness. Years of these difficult times have brought great improvement in treatment of sickle cell so personal to our family. We have learnt a lot more about how to take better care of our lives in a healthy way to enhance our lives. Drinking water to Hydrate the body is essential to enable the blood flow circulation to carry oxygen to the body. Eating well and warmth is an important factor and family support plus joining a sickle cell care support centre Essential lifeline for all associated with sickle cell patients. ABOVE ALL CHECK THE BLOOD GROUP FIRST BEFORE DATING DECLARE TO PARTNER SO CHECKED TOO. IF YOU BOTH DECIDE TO GO AHEAD TO MARRY BE PREPARED TO HONOUR CHOICE TO BRING UP RAISE FAMILY WITH SICKLE CELL WITH LOVE. Embrace all children you are responsible for bringing into the world and take best care of your family. Sickle cell children have delayed growth spurt and puberty so sometimes smaller and thinner than than classmates. They can be picked on by some children so we bring awareness in schools to encourage hydration, rest, regular absences from school for hospital treatments, delayed academic work. Often sickle cell HIDDEN DISEASE IN BLOOD INSIDE THE BONES.joint-pain
Some people look at patients who seem healthy but the next minute in hospital on admission. This unpredictable nature of the illness can affect parents raising a child fully devoted to caring for them. So the family can suffer financially by loss of income, career of parents. Children so often stay home longer due needing the help and support if family during illness especially demobilised during crises. We carry them literary as joint pains is too much to walk or function. And unable to work themselves regularly, this lack of income domino effect cycle, not earning enough sadly recurs in the family. The benefit system lumps them with others simply asking classic test assessment can you talk, can you eat by yourself, can you answer phone then well enough to work. The employers say they are not charities so have no special treatment for a staff always taking time off getting paid while hiring someone else to do the job. Some do not have long- term work with good renumeration due to health. They need medical care, family support to help supervise their treatment after hospital discharge. No community care nurses available for home treatment the family cares for them during the critical illness. Hourly medicines given at night by relatives so most live longer at home. But penalised by benefit system for not “falling out with family” before they are considered qualified for a financial help. Without jobs due to health or their work interrupted the self employed Sickle cell patient must pay back working tax credit for being ill unable to earn income. They are refused ESA because the authorities assume they are well to work so vicious cycle continues in pain without any food or heating. These issues are dealt with by the patient silently in pain, agony, tears, miss out on physical activities outdoors with peers due to isolation for hospital treatments and some Sickle cell patients faint at work for not eating for days.overcoming-stigma-in-sickle-cell-disease-8-728

These matters must be urgently clearly understood to stop the discriminations against sickle cell survivors. Sickle must not be victimised through racism by the treatment endured throughout years. As it is perceived as a black people’s illness often does not receive enough funding to help with the daily care and community support. Most people caring for a sickler depend on charity donations because of inability to work to earn to save enough or have contributions towards pensions. So they are often struggling with family health issues and financial needs. Many live on loans so in debt because not well enough to earn regular living. Employers great them as physically healthy able bodied lack understanding of the health issues associated with Sickle cell disease. The Sickle cell patients is affected so prone to illness so often sometimes for months on end. The policy makers must understand the vital help essential to support the survivors to thrive. Through no fault of their own are born with inherited disease society again Punishes them for. Discriminated against yet God created them so treat Sickle cell patients with dignity and respect. They did not go to supermarket to buy Sickle cell disease genes thrust on them so need support.    overcoming-stigma-in-sickle-cell-disease-16-728
Hospitals lack adequate training and the proper resources for their UNIQUE type treatment essential for specially trained staff.  Recently in UK ambulance service refused to take a woman in crises for not being in the usual form familiar with so refused to pick her to hospital. Assumed perhaps to be on drugs due to perceived state unfamiliar with she died during the crises stage. This is why we want people to become more aware and understand the nature and needs of sickle cell care. A beautiful Nigerian virgin woman lost her life a few months ago returning from the hospital during treatment. Someone saw her in her most vulnerable moment, and followed her raped her, killed her for her mobile phone. The family support system for sickle cell no matter how stressful or painful to put up with mood pains has to continue. NEVER MISTAKE CRISES PAIN AS TANTRUMS EMBRACE PATIENT BY LOVE AND ENCOURAGE THEM NO MATTER HOW IRRITTATING THEY SEEM SOME BADLY AFFECTED BY MORPHINES so their personality moods CHANGE. IMPORTANT TO KNOW SOME MEN ARE RELUCTANT TO SEEK QUICK MEDICAL HELP THINKING THEY ARE “WEAK” SO ‘TAKE PAIN’ UNTIL CRISES STAGE BEFORE SEEKING TREATMENT. Family has to be there to encourage all to seek help, eat well, rest and sleep not to take their lives for granted, love them. overcoming-stigma-in-sickle-cell-disease-3-728Often misconstrued as an ethnic illness, only it is so necessary to understand that the generation intermix marriages have background unaware illness in bloodline. Check blood in advance of any potential relationships for tests to help you take better care of yourself and your partner and children. Discover in generations of family trees ang unusual blood history if different to shape of flexible regular red round blood cells. Sickle cells can affect white families, causes numerous health problems for those born with the sickle cell condition. Sickle cell shape means the blood does not flow easily around the body as in regular blood circulation. As a result the sickler person suffers from the severe sickle pain resulting of blockage of the veins. Extreme severe pain affects vital organs in the body so can damage parts of the body of sufferer. Sickle cells tissues die quickly than the healthy red blood cells resulting in anaemia as there are less effective red blood cells in body to transport oxygen hence health issues.Sickle cell anaemia is a genetic condition so a baby is born with sickle cell disease if each parent carry a copy of the genes. Each child has 25% chance unaffected, 50% chance of being a carrier of sickle cell gene and 25% chance of full sickle cell. So it is essential Sickle cell is treated as part of the mainstream health care system not just an ethnic minority people of African, Caribbean, or Middle Eastern, Eastern Mediterranean, Asian origin affected by sickle cell disease. The Northern Europeans affected in Greece and other places as people of African and Caribbean heritage affected. NHS needs training to understand the unpredictable nature of sickle cell illness in community to support to all families to get on with their lives. NHS throws away 10 billion pounds worth food waste money needed for better health care treatment in all hospitals including sickle cell anaemia.

care-of-sickle-cell-disease-patients-process-improvement-change-with-nurses-3-638

Sickle Cell Anaemia Facts

  • African Caribbean heritage often mostly affected
  • Those with sickle cell trait genes pass on sickle cell to children
  • Worldwide 305,800 newborns with sickle cell disease in 2010 although all birthday unrecorded worldwide
  • In 2010 57% newborns with sickle cell from India, DRCongo, Nigeria
  • Universal screening program could save the lives of 10 million babies
  • Sickle cell disease is most inherited blood condition in the UK
  • Average Life expectancy for sickle cell in high income countries is 40 – 60 years but with treatment live to 80 years and beyond.

overcoming-stigma-in-sickle-cell-disease-6-728

Sickle Cell Cord Cell Treatments

Children with sickle cell disease have now successfully been treated with cord cell transplant. Initially, this treatment was thought to be too toxic to extend to adults with the disease after their bodies have been greatly weakened. However, researchers in Maryland have modified the transplant procedure to ascertain it’s potential in treating adults with sickle cell disease. Between 2004 and 2013, 30 patients with severe sickle cell disease enrolled in trial. The patients, between the ages of 16 and 65, underwent a less toxic form of chemotherapy before they received cord cells donated by a healthy sibling. Researchers discovered a sickle cell disease was reversed in 87% of the patients. The patients had fewer hospital admissions; reduced drug use to treat the pain associated with sickle cell and had normal haemoglobin. A year after their transplants, 15 patients stopped taking immunosuppressant medication. In addition, massage helps blood flow so family can massage babies and adults to enhance blood circulation. Those who do not want blood transfusions have other serum blood saved during surgery using own blood or bloodless surgeries. Today, billions of people are unaware of Sickle Cell which is NOT CONTAGIOUS so you cannot catch it. Yet awareness and the proper training on how to handle the person suffering especially during their critical moments of crises saves lives. It is very important patients receive card and support required and not considered lazy people exploiting others. Their food and nutrition has to be healthy for their body to work well and harder to supply a basic basic flow so their haemoglobin is always lower than average person’s. It is good to educate schools, churches, and nurses in addition, doctors and carers on suitable care needs. Families can have a Sickle Cell marital counselling to help chose a partner. Others check in advanc family tree bloodline so safely decide to make informed choice for the future.Adjuah Annan Foundation for Sickle Cell Disease .

We are raising £5,000 to fund The Adjoa Annan Foundation to increase people’s awareness of Sickle Cell Disease globally to improve services. Many more Health and medical professionals need urgent training on how to handle and manage sickle cell patients better. Funding is the new way to raise money for any personal cause on JustGiving to improve lives of others. Adjoa would have been 31 today, instead of celebrating birthday picked up her death certificate, but in keeping with the girl we have setup the Adjoa Annan Foundation for Sickle Cell Disease in her memory. We will be working for people with Sickle Cell Disease where ever they are. We hope to achieve 3 things within the year: Develop an App that will allow people with Sickle Cell to share rate their hospital stay. This will put hospitals on their mettle. At Adjoa’s inquest found out that hospitals are not used to being questioned about their treatment of any person with Sickle Cell Disease. With an attitude of Trust me I am a doctor or the expert so leave treatment to decide yet often unfamiliar with critical sickle cell symptoms. The App will put people with the disease in the driving seat to be able to say how hospitals perform. With a map of where people with Sickle Cell are in the world and what is being done for them Adjoa Annan Foundation will be first people to do this. Sickle Cell exists in Europe and Africa, Caribbean, Middle East, Australia and New Zealand. This research will be the calling card to make difference to the Sickle Cell patient. An annual prize to medical students who write best Essay on all aspects of Sickle Cell will make medical profession aware of serious issues surrounding Sickle Cell. Important to bring awareness through designed webpage, Twitter Facebook accounts and other sites. People on our side, President Obama wrote condolence letter for Adjoa and will be reaching out to him to play a role in the foundation. Celebrities must support to give generously as possible to Foundation to get on the feet. Donations, no matter how small is valued and appreciated even the smallest amounts. care-of-sickle-cell-disease-patients-process-improvement-change-with-nurses-9-638The  symptoms include pneumonia. It is widely known that many sufferers develop other secondary illnesses which can have a significant impact upon their health and lifestyle. Some of these include:- 

  • Heart problems
  • Stroke (brought on by hypertension or prolonged pain episodes)
  • Kidney failure
  • Anaemia
  • Eye deterioration (bleeding in the eyes/floaters, which can lead to blindness)
  • Mobility issues (caused by necrosis of the hips – the death of most or all of the cells in an organ or tissue due to disease, injury, or failure of the blood supply).
  • Chronic and disabling pain.
  • Thyroid disease
  • Arthritis
  • risk sudden acute pain in the chest with coughing of blood often can be seen. The person may get fever and experience shortness of breath due to shortage of oxygen in their blood circulation.
  • Sometimes lung crisis is seen as a result of scarred lungs or the other lung related problems caused by lack of blood oxygen.
  • Debilitated intense pain demobilise  the person unable to take personal care of themselves.  Sometimes the most crucial moment for caring for sickle patient.
  • The person relies totally on others for help to be provided for them due to crises.
  • Oxygen breathing equipment used to help alleviate pain and to ease breathing process.

Chest pain causes heart attack and stroke so must be GIVEN PRIORITY URGENT CRITICAL INTENSIVE CARE TREATMENT EVERY SECOND COUNTS TO SAVE PRECIOUS LIVES.lung-anatomy.jpgIn addition many suffer from a sudden abdominal crisis and constant pain in the abdomen seen in an affected person. Sometimes these pains spread all over the body simultaneously causing sickler to be very critically ill. The intense pain prevents ability to move so the person needs help for personal care. It is alright to train the patient and staff to use adult disposable pants if available for care in such times. So person needs urgent care to be taken care almost like a baby due to excruciating unrelenting pain is followed by swelling hands, body, bone crises, nausea, vomiting, diarrhoea.Abdominal-crisis

AWARENESS TO PRACTICE MANAGERS
We are raising awareness of sickle cell/ Thalassemia health issues. We provide information about this condition to the frontline staff to become more aware of Sickle cell needs. We hold talks on the IMPACT of Sickle cell on treatment of a WHOLE PERSON not just the symptoms. Awareness to all people on holistic care so vital treatment services understand sickle cell condition, additional issues or problems caused by sickle cell.
* The weather changes affect sickle cell especially from Summer to winter and vice versa. Their body finds it harder to adjust changes so some experience crises in between changes of weather.
*Must be kept warm at all times because cold triggers sickle cell acute crises.
*Must be allowed to drink water to be hydrated to take a bottle of water into a classroom throughout lessons.
* To keep coat on in classroom if cold.
* To use bathroom during lessons.
* To have buddy peer mentors to keep in touch and update on courses and notes.
* To have a support staff worker or one to one tutor to catch up on lessons lost due to time spent in HOSPITAL.
* Must be allowed to take medications prescribed by their doctors.
* To be aware chronic pain delays course work so affects timeline of assignments and impacts exams.
*Cannot perform strenous physical task detrimental to their health.
* Exempt from PE, swimming if unwell.
* Must not be seen as lazy because of the symptoms of the sickle cell condition.
*When crises occurs some treatments require blood transfusions due to the anaemia because haemoglobin count is extremely low caused by the sickle cell.
*Treatment includes regular massages to improve blood circulation.
*A person with sickle cell may need to wear circulation stockings at all times, this will help to keep leg ulcers away. 
STANDARD QUESTIONS HEALTHCARE, SCHOOL, COLLEGE STAFF MUST ASK:
1. Do you know your Sickle Cell Status? To help identify potential patients.
2.  Are you a Sickle Cell Sufferer and do you receive appropriate treatment?
3. Are you aware of Sickle Cell Care or receiving support in the Community?
4. Do you have regular massages to help enhance blood circulation?
5. Have you any health needs related to sickle cell condition?
Additional Services We Provide:
We provide Social Care to the Sickle Cell patients to help live on a daily basis with community support.
  • We accept referrals and do referrals to relevant professional agencies
  • We are available to train frontline staff, at your convenience.
  • We provide free services to staff or professionals to ensure the holistic best care treatment for patients.
  • Treatment includes massages to enhance blood flow circulation
  • Encourage to eat healthy foods, cut out fat, oils and butter as it causes cholesterol, jaundice so coagulates and thickens sticky blood blocking veins causing acute sickle crises
  • Ensure they sleep well, hydrate and drink water not carbonated fizzy drinks to take help blood flow.
  • Family support is crucial so must be allowed to have personal carers during crises as often demobilised
  • Volunteers help care for them in a community setting as not safe to be alone during critical trauma
  • Training Frontline doctors, nurses, and ambulance services to give an urgent emergency help and oxygen to help them breath better.
  • In extreme pain may need personal assistance with shopping, cooking, cleaning, washing, personal care if unable to move by themselves.
  • Most live at home longer, essential for support during sickle crises
  • Never assume if can eat, talk, walk unaided therefore fit because it is invisible blood and bone condition
  • Above all, our aim is to help them to be treated properly to live longer
  • Thank you for encouraging people to be more positive towards sickle cell condition and more thoughtful of what to say to them especially during crises. People can use sense of humour to share a joke to create laughter even in the midst of pain to ease tension or stress pressure of treatment environment.
  • Others prefer empathy of being allowed to verbalise all negative feelings before they feel listened or and heard so let people know what you like they do not read minds.
  • It is important employers be aware and understand sickle cell pain affects work performance and input compared to healthy, fit and able colleagues so not treat you as “lazy” or having attitude problems.
  • Tell them it is acute blood and deep bone disease with constant pain and chronic pain during crises so cannot function as usual during crises. Give them leaflets on sickle cell condition to educate staff to have due consideration as part of your human rights for health.
  • Take advantage of September Sickle Cell Month, bring awareness not use excuse not charity to treat sickle cell sufferer differently due to their genuine health needs.
  • Refer read detailed information on sickle cell crises needs, treament and vital support essential from frontline staff.
  • If possible join and attend support group meetings and have peer buddy mentor who identifies with your experience.
  • Budget cuts reduce the number of doctors, staff employed so the few available are overstretched beyond limit. Be realistic not to expect too much exclusively because of other emergencies taking place require their attention simultaneously.
  • Take more control of your life and work towards hydration, and rest, eating well, taking care of yourself, ask others in advance how you need help, support, be specific.
  • Credit crunch affects resources and basic human dignity, so if on one is feeling you and acknowledging you as part of clinical treatment, tell people about your feelings or call attention to your specific situation. All the best and you will overcome.
  • With God all things are possible.